Around the north east, all the local authorities have an action plan for autism which is intended to improve the services provided by local authorities and health for young people and adults with ASCs.
Every action plan in our region contains the priority to engage with local people with ASCs. There has been a variety of different ideas about how this can be done. some araeas already have a user-led "support group" or a sub-group from their Learning Disability Partnership Board whose members have Learning Disability and/or autism. Some areas have no reliable way of listening to the views and experiences of local people with ASCs. The NEAC project manager, Pam Lawrence, is available to talk to individuals or existing groups about how they can feed into the work of the Local Autism Working Groups.
- Why is it important for you to do this?
The local autism action plans have been created because of the national autism strategy "Rewarding and Fulfilling Lives" and legal guidance about the services and support that local authorities and PCTs must do to meet the needs of people with ASCs. The Local Autism Working Groups and Autism Service Development Groups are chaired by senior managers or commissioners in the local authority. Other decision makers or fund holders also come to these meetings from health (PCT), education, Connexions, children's services etc. These groups are also making links with housing providers and the criminal justice system amongst others.
All the important priorities and plans are decided at these meetings and it would be very bad practice if the people on the receiving end of services are not properlly engaged in helping to design and review services and plans.
If you would like to talk about this more, please call (0776 042 0251) or email Pam Lawrence
The National Autistic Society (NAS) has established a ground-breaking partnership with Remploy, the UK's leading provider of employment services for disabled people, to help increase the number of people with autism entering mainstream employment.
***** Family study on autism - volunteers needed *****
Cambridge University are looking for volunteers to participate in a study that is currently taking place at the Open University in collaboration with the Autism Research Centre of Cambridge University.
The purpose of the research is to examine to what extent children with autism resemble their parents on a series of tasks. This study may give us important insights about which characteristics are shared between parents and children and which features are not.
We are currently seeking the participation of very special families, who have two or more children with an autism spectrum diagnosis. The participation of such families is of extreme value to our research study, and will greatly help us with this investigation into the personality characteristics and cognitive abilities of children on the autism spectrum and their parents.
It should also be mentioned that we are able to travel to participating families if needed, as we do not expect families having to travel to Cambridge or Milton Keynes to take part, unless they wanted to.
If you would like to know more information please contact Edward Sucksmith directly on 01223 746030 or by email (es504@medschl.cam.ac.uk).
Finished at School
A new campaign launched by Ambitious about Autism, which aims to secure more and better educational options for all young people with autism aged 16 – 25 to enable them to develop skills, gain employment, live more independently and ultimately live the life they choose. Amongst the issues it raises, it calls for a clear legal right to educational support up to the age of 25 for young disabled people and a funding system that gives young people and families more information, choice and support. http://www.ambitiousaboutautism.org.uk/page/who_we_are/news/article/index.cfm?articleId=88
Overcoming social work barriers to person-centred care
The National Autistic Society
A diagnosis of autism lasts a lifetime, so it's vital that adults, as well as children, get the support they need. The NAS has always supported those with autism of all ages, but we are continuing to improve our adult provision through our growing network of adult and community support services. They meet every level of need, from outreach services for those who would like a few hours of assistance each week, to residential and supported living services for those who need more intensive support. Increasingly, we also provide student support for people with autism in further and higher education. Our aim is straightforward - to make sure that every adult with autism enjoys the dignity and independence that other people take for granted. In the past few months alone, we've opened new supported living services in Kingston-upon-Thames and on the Isle of Wight, where there are also plans to develop more community services. These are exciting and very welcome additions to the dozens of similar services we already operate around the UK. Visit our website to find out how we can help you - and if you share our aims, please support us so we can continue our work.
Autism Rights Group Hartlepool
Cuts could 'deny independence' to learning disabled people. Read the Community Care full report here.
NICE diagnostic guidance for children and young people with autism
Personalisation: Councils urged to boost user choice
Inclusion North Bulletin No 2
Boom in personal assistants drives adult sector growth
Personal Assistant Training Course starts 7th September
Working for personalised care: A Framework for supporting personal assistants working in adult social care
Support for families info sheet
GREAT EXPECTATIONS - our chance to shape the future of a generation of children with autism
The National Personal Budget Survey - summary of main findings
Durham & Darlington Autism Support Groups
Dilnot Report: Creating a fair and sustainable care and support system
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